ME/CFS - evidence based treatments
Dear Department of Health,
I am seeking a copy of guidelines/information sheets/correspondence containing a list of evidence based drugs for treating the neurological condition myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Yours faithfully,
Julie Keys
Good afternoon Ms Keys,
Acknowledgement of receipt of Freedom of Information request
I refer to your request received by the Department of Health and Aged Care
(the department) for access to documents under the Freedom of Information
Act 1982 (FOI Act). You have requested access to:
A copy of guidelines/information sheets/correspondence containing a list
of evidence-based drugs for treating the neurological condition Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
The reference number for your request is FOI 25-0036 LD. Please ensure
that you quote this number in future correspondence with us concerning
this request.
Timeframes
Your request was received on 2 October 2024. The statutory timeframe for
processing your request is 30 calendar days and you should expect to be
notified of a decision from the department on or before 1 November 2024.
The period of 30 days may be extended if the department needs to consult
third parties or for other reasons. We will advise you if this happens.
Other Information
The department may impose a charge for the work involved in providing
access to the documents. If this request attracts a charge you will be
notified in writing.
Unless you advise otherwise:
· any draft and duplicate documents will be excluded from the scope
of your request, and
· any public service employee names below Senior Executive Service
level and direct telephone numbers of all staff will be excluded from the
scope of your request under s22(1)(a)(ii) of the FOI Act.
Please note that information released under the FOI Act may later be
published online on our disclosure log
[1]www.health.gov.au/resources/foi-disclosure-log, subject to certain
exceptions. (For example, personal information will not be published where
this would be unreasonable.)
You can contact the FOI team via email at [2][email address] or by phone
on 02 6289 1666, should you have any questions.
Kind regards,
FOI Case Officer – Freedom of Information Section
Legal Advice and Legislation Branch
Legal Division | Corporate Operations Group
Australian Government Department of Health and Aged Care
T: 02 6289 1666 | E: [3][email address]
PO Box 9848, Canberra ACT 2601, Australia
The Department of Health and Aged Care acknowledges First Nations peoples
as the Traditional Owners of Country throughout Australia, and their
continuing connection to land, sea and community. We pay our respects to
them and their cultures, and to all Elders both past and present.
--------------------------------------------------------------------------
From: Julie Keys [4][FOI #12132 email]
Sent: Wednesday, October 2, 2024 9:04 PM
To: FOI [5][email address]
Subject: Freedom of Information request - ME/CFS - evidence based
treatments
REMINDER: Think before you click! This email originated from outside our
organisation. Only click links or open attachments if you recognise the
sender and know the content is safe.
Dear Department of Health,
I am seeking a copy of guidelines/information sheets/correspondence
containing a list of evidence based drugs for treating the neurological
condition myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Yours faithfully,
Julie Keys
-------------------------------------------------------------------
Please use this email address for all replies to this request:
[6][FOI #12132 email]
Is [7][Health request email] the wrong address for Freedom of Information
requests to Department of Health? If so, please contact us using this
form:
[8]https://www.righttoknow.org.au/change_re...
This request has been made by an individual using Right to Know. This
message and any reply that you make will be published on the internet.
More information on how Right to Know works can be found at:
[9]https://www.righttoknow.org.au/help/offi...
Please note that in some cases publication of requests and responses will
be delayed.
If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.
-------------------------------------------------------------------
"Important: This transmission is intended only for the use of the
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If you are not the intended recipient, you are notified that any use or
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References
Visible links
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7. mailto:[Health request email]
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9. https://www.righttoknow.org.au/help/offi...
Dear Ms Keys
We refer to your FOI request received on 2 October 2024.
Please find attached a decision on access.
If you have any queries in relation to this decision, please contact the
FOI Section on the details below.
Yours sincerely
Guy
Freedom of Information Section
Legal Advice and Legislation Branch
Legal and Assurance Division | Corporate Operations Group
Australian Government, Department of Health and Aged Care
T: 02 6289 1666 | E: [1][email address]
PO Box 9848, Canberra ACT 2601, Australia
The Department of Health and Aged Care acknowledges the traditional
custodians of Australia and their continued connection to land, sea and
community. We pay our respects to elders past and present.
If you receive this email in error, please delete it and contact the
sender immediately.
"Important: This transmission is intended only for the use of the
addressee and may contain confidential or legally privileged information.
If you are not the intended recipient, you are notified that any use or
dissemination of this communication is strictly prohibited. If you
receive this transmission in error please notify the author immediately
and delete all copies of this transmission."
References
Visible links
1. mailto:[email address]
Dear FOI,
I note that despite extensive searches the Department of Health and Aged Care has been unable to locate any internal correspondence relating to evidence based treatments for ME/CFS.
Whilst I appreciate the effort made to date, I find it extraordinary that the Department has not found any correspondence about a disease that pre Covid was found to affect more than 250 000 Australians (25% of them bed or housebound).
Yours sincerely,
Julie Keys
Dear Ms Keys,
FREEDOM OF INFORMATION INTERNAL REVIEW REQUEST – NOTIFICATION OF RECEIPT
I am writing to notify you that the Department of Health and Aged Care
(department) has received your request for an Internal Review of a
decision on access made by the department on 30 October 2024 under the
Freedom of Information Act 1982 (Cth) (FOI Act).
The department has 30 calendar days after the date your request was
received (7 November 2024) to notify you of its decision on the internal
review.
You can contact the FOI Section via email at [1][email address], should
you have any questions.
Kind regards,
FOI Case Officer – Freedom of Information Section
Legal Advice and Legislation Branch
Legal Division | Corporate Operations Group
Australian Government Department of Health and Aged Care
T: 02 6289 1666 | E: [2][email address]
PO Box 9848, Canberra ACT 2601, Australia
The Department of Health and Aged Care acknowledges First Nations peoples
as the Traditional Owners of Country throughout Australia, and their
continuing connection to land, sea and community. We pay our respects to
them and their cultures, and to all Elders both past and present.
--------------------------------------------------------------------------
-----Original Message-----
From: Julie Keys <[FOI #12132 email]>
Sent: Thursday, 7 November 2024 1:01 AM
To: FOI <[email address]>
Subject: Internal review of Freedom of Information request - ME/CFS -
evidence based treatments
REMINDER: Think before you click! This email originated from outside our
organisation. Only click links or open attachments if you recognise the
sender and know the content is safe.
Dear FOI,
I note that despite extensive searches the Department of Health and Aged
Care has been unable to locate any internal correspondence relating to
evidence based treatments for ME/CFS.
Whilst I appreciate the effort made to date, I find it extraordinary that
the Department has not found any correspondence about a disease that pre
Covid was found to affect more than 250 000 Australians (25% of them bed
or housebound).
Yours sincerely,
Julie Keys
-----Original Message-----
Dear Ms Keys
We refer to your FOI request received on 2 October 2024.
Please find attached a decision on access.
If you have any queries in relation to this decision, please contact the
FOI Section on the details below.
Yours sincerely
Guy
Freedom of Information Section
Legal Advice and Legislation Branch
Legal and Assurance Division | Corporate Operations Group
Australian Government, Department of Health and Aged Care
T: 02 6289 1666 | E: [1][email address]
PO Box 9848, Canberra ACT 2601, Australia
The Department of Health and Aged Care acknowledges the traditional
custodians of Australia and their continued connection to land, sea and
community. We pay our respects to elders past and present.
If you receive this email in error, please delete it and contact the
sender immediately.
"Important: This transmission is intended only for the use of the
addressee and may contain confidential or legally privileged information.
If you are not the intended recipient, you are notified that any use or
dissemination of this communication is strictly prohibited. If you
receive this transmission in error please notify the author immediately
and delete all copies of this transmission."
References
Visible links
1. [3]mailto:[email address]
-------------------------------------------------------------------
Please use this email address for all replies to this request:
[4][FOI #12132 email]
This request has been made by an individual using Right to Know. This
message and any reply that you make will be published on the internet.
More information on how Right to Know works can be found at:
[5]https://www.righttoknow.org.au/help/offi...
Please note that in some cases publication of requests and responses will
be delayed.
If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.
-------------------------------------------------------------------
"Important: This transmission is intended only for the use of the
addressee and may contain confidential or legally privileged information.
If you are not the intended recipient, you are notified that any use or
dissemination of this communication is strictly prohibited. If you
receive this transmission in error please notify the author immediately
and delete all copies of this transmission."
References
Visible links
1. mailto:[email address]
2. mailto:[email address]
3. mailto:[email
4. mailto:[FOI #12132 email]
5. https://www.righttoknow.org.au/help/offi...