Julie Keys
Joined Right to Know in 2024
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This person's Freedom of Information requests (approximately 15)
ME/CFS - background to the drug list contained in the 2024 TAB document
Follow up sent to National Disability Insurance Agency by Julie Keys on .
Long overdue.
I am happy that you are processing my request but extremely frustrated that the NDIA does not meet its statutory obligtions.
Yours sincerely,
Ju...
ME/CFS - evidence based treatments
Response by Department of Health to Julie Keys on .
Awaiting classification.
Good afternoon Ms Keys,
I refer to your FOI request of 9 December 2024 to the Department of Health
and Aged Care (department), seeking access un...
ME/CFS: how to manage this neurological disability
Response by National Disability Insurance Agency to Julie Keys on .
Long overdue.
Hello and thank you for writing to the FOI team.
Please be advised that during the holiday period, the NDIA FOI offices
will be closed from Tues...
ME/CFS - response to the NHMRC's 2019 recommendation to update the 2002 guidelines
Response by National Health and Medical Research Council to Julie Keys on .
Awaiting classification.
Dear Julie
Re: Freedom of Information Request: No. 2024/25-002 – Access decision
Please see the attached correspondence, schedule of docume...
ME/CFS- Information on how to ensure patient safety and quality.
Response by Australian Commission on Safety and Quality in Health Care to Julie Keys on .
Information not held.
Dear Julie,
Please see attached notice of the decision regarding your Freedom of Information request (2404) from the Executive Director, Intergovernme...
Determination of Permanent Disability - ME/CFS
Response by National Disability Insurance Agency to Julie Keys on .
Delayed.
Dear Julie Keys
Freedom of Information Request: Acknowledgement
Thank you for your request of 2 December 2024, made under the Freedom of
I...
ME/CFS - How do you require functional capacity to be demonstrated
Follow up sent to National Disability Insurance Agency by Julie Keys on .
Information not held.
I note your response and that the NDIA’s Service Guidance (SG), Technical Advice and Practice Improvement (TAPIB) and Service Delivery (SD) Branch...
ME/CFS - drugs Australians are expected to take
Follow up sent to National Disability Insurance Agency by Julie Keys on .
Information not held.
I note that the only information on drugs Australians may be expected to take are detailed in the 2024 TAB document Myalgic encephalomyelitis / Chr...
ME/CFS - Treatments (second request)
Response by National Disability Insurance Agency to Julie Keys on .
Refused.
Dear Julie Keys,
Thank you for your email, and my apologies that you were not satisfied
with the outcome of your FOI request.
Please note...
ME/CFS Electroencephalogram (EEG) to objectively measure reduction in brain function with exertion
Response by SA Health to Julie Keys on .
Refused.
OFFICIAL
OFFICIAL
Dear Julie
Thank you for contacting the Department for Health and Wellbeing.
Please note your email is not a vali...
Treatments Myalgic Encephalomyelitis - also known as ME/CFS
Response by National Disability Insurance Agency to Julie Keys on .
Partially successful.
Dear Julie Keys
Thank you for your email below.
During 2024, you have made three FOI requests to the National Disability
Insurance Agency. These...
ME/CFS - seeking information on why these patients are denied access to specialist care
Response by Queensland Health to Julie Keys on .
Refused.
Dear Julie,
Queensland Health is a State agency and therefore falls under the jurisdiction of the Right to Information Act 2009 (Qld), not the Freedom...
ME/CFS - Management (Second FOI request for the same information)
Response by National Disability Insurance Agency to Julie Keys on .
Successful.
Dear Julie Keys,
Thank you for your response.
Please take this email as a confirmation of withdrawal of your FOI request - FOI 24/25-0308
Kind regar...
How will functional capacity of people with ME/CFS be measured by the NDIA?
Internal review request sent to National Disability Insurance Agency by Julie Keys on .
Awaiting internal review.
Please pass this on to the person who conducts Freedom of Information reviews.
I am writing to request an internal review of National Disability I...
Management of Myalgic Encephalomyelitis - Chronic Fatigue Syndrome (ME/CFS)
Response by National Disability Insurance Agency to Julie Keys on .
Partially successful.
Dear Julie Keys
Thank you for your requests for information.
Please find attached correspondence and documents in relation to your
requests. If y...
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