ME/CFS Electroencephalogram (EEG) to objectively measure reduction in brain function with exertion

The request was refused by SA Health.

Dear SA Health,

I am seeking information held by SA Health on the use of Electroencephalogram (EEG) by neurologists (or other clinicians) to provide objective information about how the body and brain are performing in people who experience post exertional symptom exacerbation of ataxia, headaches, sensory overload. problems with cognitive function.

Yours faithfully,

Julie Keys

Note these are patients who meet the following Guidelines:
UK NICE Guidelines for ME/CFS
The Mayo Clinic Guidelines for ME/CFS
The Institute of Medicine (IOM) - USA Centre for Disease Control Guidelines for ME/CFS

Health:CE, SA Health

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Dear SA Health,

To clarify the testing that I am talking about is carried out by the Workwell Foundation as per their website

https://workwellfoundation.org/testing-f...

Yours faithfully,

Julie Keys

Dear SA Health,

I am still waiting for a response to this request.

Please advise when you intend to respond.

Yours faithfully,

Julie Keys

Health:FOI (OCE),

1 Attachment

OFFICIAL

OFFICIAL

 

Dear Julie

 

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Please note your email is not a valid Freedom of Information (FOI)
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Government of South Australia

 

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From: Health:CE <[email address]>
Sent: Friday, October 11, 2024 11:17 AM
To: Health:FOI (OCE) <[email address]>
Subject: FW: Freedom of Information request - ME/CFS Electroencephalogram
(EEG) to objectively measure reduction in brain function with exertion

 

OFFICIAL

 

OFFICIAL

Good morning,

 

Please see below update from the auhtor.

 

Please make appropriate contact with the author as relevant.

 

Kind regards,

 

Department for Health and Wellbeing

SA Health | Government of South Australia

 

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OFFICIAL

 

-----Original Message-----
From: Julie Keys <[6][FOI #12026 email]>
Sent: Friday, October 11, 2024 10:34 AM
To: Health:CE <[7][SA Health request email]>
Subject: Re: Freedom of Information request - ME/CFS Electroencephalogram
(EEG) to objectively measure reduction in brain function with exertion

 

[You don't often get email from
[8][FOI #12026 email]. Learn why this is
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Dear SA Health,

 

 

 

I am still waiting for a response to this request.

 

 

 

Please advise when you intend to respond.

 

 

 

Yours faithfully,

 

 

 

Julie Keys

 

 

 

-----Original Message-----

 

 

 

This is an automated email

 

 

 

  For urgent medical attention, please call 000

 

 

 

The below information may address your concerns, if your query is not

 

answered by the below a response will be forwarded to you at the earliest

 

convenience. Where your query is answered by the below information, no

 

further response will be provided.

 

 

 

On behalf of the Chief Executive, Department for Health and Wellbeing,

 

thank you for your email.

 

 

 

This email account is monitored by the Corporate Correspondence and

 

Reporting Team South Australia (SA Health) during business hours Monday to

 

Friday.

 

 

 

Please note, if you are writing on behalf of, or relation to, another

 

person, an Authority to Release Personal Information may be required to be

 

completed by that person.

 

 

 

SA Health will:

 

 

 

·    aim to open all correspondence within 1 business day of receipt and

 

aim to respond within 30 working days of receipt. The most appropriate SA

 

Health representative will respond to your enquiry.

 

 

 

·    where any issues you raise are outside SA Health’s responsibilities,

 

forward your correspondence to another Minister or agency for their

 

attention. We will let you know when we do this.

 

 

 

·    where the matter relates to an individual care or point of care

 

treatment including elective surgery waiting timeframe it will be referred

 

to the relevant Local Health Network (LHN)/ SA Ambulance (SAAS) for a

 

direct response to you. You are encouraged to contact the LHN/SAAS

 

directly in the first instance.

 

 

 

·    where the issues, matter or information provided is just for noting

 

or no action has been requested it will be provided to the relevant health

 

division in the department or LHN/SAAS for noting and appropriate

 

consideration.

 

 

 

·    only respond to items where SA Health/Chief Executive is the primary

 

recipient – not where we are carbon copied (cc’d).

 

 

 

·    delete unsolicited advertisements without response.

 

 

 

·    not respond to correspondence with offensive language or content.

 

 

 

·    not reply to issues that are addressed by the information provided in

 

the auto response (where relevant).

 

 

 

·    forward any correspondence with threatening content or advocating

 

illegal activities to the SA Police.

 

 

 

·    treat your correspondence with the appropriate level of

 

confidentiality consistent with the PC 012 – Information Privacy

 

Principles (IPPS) and the State Records Act 1997.

 

 

 

 

 

 

 

COVID-19 : For information about COVID-19 and Vaccinations please refer to

 

the website [1]here

 

 

 

For further information regarding COVID or COVID Symptoms, you may wish to

 

call National Coronavirus helpline on 1800 020 080, or refer to the

 

healthdirect website [2]here

 

 

 

 

 

 

 

Students requesting information for research papers are referred to

 

the [3]Data.SA website for list of available data sets.

 

 

 

All other information regarding SA Health, please refer to our

 

website [4]here

 

 

 

 

 

 

 

  Kind regards

 

 

 

Office of the Chief Executive

 

 

 

Department for Health and Wellbeing

 

 

 

Email | [5][email address]

 

 

 

Mail |  PO Box 287, Rundle Mall, Adelaide SA 5001

 

 

 

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privileged. Only the intended recipient/s may access, use, distribute or

 

copy this email. If this email is received in error, please inform the

 

sender by return email and delete the original. If there are doubts about

 

the validity of this message, please contact the sender by telephone. It

 

is the recipient’s responsibility to check the email and any attached

 

files for viruses.

 

 

 

 

 

 

 

 

 

 

 

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