ME/CFS Electroencephalogram (EEG) to objectively measure reduction in brain function with exertion

The request was refused by SA Health.

Dear SA Health,

I am seeking information held by SA Health on the use of Electroencephalogram (EEG) by neurologists (or other clinicians) to provide objective information about how the body and brain are performing in people who experience post exertional symptom exacerbation of ataxia, headaches, sensory overload. problems with cognitive function.

Yours faithfully,

Julie Keys

Note these are patients who meet the following Guidelines:
UK NICE Guidelines for ME/CFS
The Mayo Clinic Guidelines for ME/CFS
The Institute of Medicine (IOM) - USA Centre for Disease Control Guidelines for ME/CFS

Health:CE, SA Health

This is an automated email

 For urgent medical attention, please call 000

The below information may address your concerns, if your query is not
answered by the below a response will be forwarded to you at the earliest
convenience. Where your query is answered by the below information, no
further response will be provided.

On behalf of the Chief Executive, Department for Health and Wellbeing,
thank you for your email.  

This email account is monitored by the Corporate Correspondence and
Reporting Team South Australia (SA Health) during business hours Monday to
Friday.

Please note, if you are writing on behalf of, or relation to, another
person, an Authority to Release Personal Information may be required to be
completed by that person. 

SA Health will:

·    aim to open all correspondence within 1 business day of receipt and
aim to respond within 30 working days of receipt. The most appropriate SA
Health representative will respond to your enquiry.

·    where any issues you raise are outside SA Health’s responsibilities,
forward your correspondence to another Minister or agency for their
attention. We will let you know when we do this.

·    where the matter relates to an individual care or point of care
treatment including elective surgery waiting timeframe it will be referred
to the relevant Local Health Network (LHN)/ SA Ambulance (SAAS) for a
direct response to you. You are encouraged to contact the LHN/SAAS
directly in the first instance.

·    where the issues, matter or information provided is just for noting
or no action has been requested it will be provided to the relevant health
division in the department or LHN/SAAS for noting and appropriate
consideration.

·    only respond to items where SA Health/Chief Executive is the primary
recipient – not where we are carbon copied (cc’d).

·    delete unsolicited advertisements without response.

·    not respond to correspondence with offensive language or content.

·    not reply to issues that are addressed by the information provided in
the auto response (where relevant).

·    forward any correspondence with threatening content or advocating
illegal activities to the SA Police.

·    treat your correspondence with the appropriate level of
confidentiality consistent with the PC 012 – Information Privacy
Principles (IPPS) and the State Records Act 1997.

 

COVID-19 : For information about COVID-19 and Vaccinations please refer to
the website [1]here

For further information regarding COVID or COVID Symptoms, you may wish to
call National Coronavirus helpline on 1800 020 080, or refer to the
healthdirect website [2]here

 

Students requesting information for research papers are referred to
the [3]Data.SA website for list of available data sets.

All other information regarding SA Health, please refer to our
website [4]here

 

 Kind regards 

Office of the Chief Executive

Department for Health and Wellbeing

Email | [5][email address]

Mail |  PO Box 287, Rundle Mall, Adelaide SA 5001

Website | [6]https://www.sahealth.sa.gov.au/

This email may contain confidential information, which also may be legally
privileged. Only the intended recipient/s may access, use, distribute or
copy this email. If this email is received in error, please inform the
sender by return email and delete the original. If there are doubts about
the validity of this message, please contact the sender by telephone. It
is the recipient’s responsibility to check the email and any attached
files for viruses.

 

 

References

Visible links
1. https://www.sahealth.sa.gov.au/wps/wcm/c...
2. https://www.healthdirect.gov.au/
3. https://data.sa.gov.au/
4. https://www.sahealth.sa.gov.au/wps/wcm/c...
5. mailto:[email address]
6. https://www.sahealth.sa.gov.au/

Dear SA Health,

To clarify the testing that I am talking about is carried out by the Workwell Foundation as per their website

https://workwellfoundation.org/testing-f...

Yours faithfully,

Julie Keys

Dear SA Health,

I am still waiting for a response to this request.

Please advise when you intend to respond.

Yours faithfully,

Julie Keys

Health:FOI (OCE),

1 Attachment

OFFICIAL

OFFICIAL

 

Dear Julie

 

Thank you for contacting the Department for Health and Wellbeing.

 

Please note your email is not a valid Freedom of Information (FOI)
application. To lodge a FOI, please choose one of the following options:

o completing a form
[1]https://www.archives.sa.gov.au/__data/as...
o completing an [2]online form
o send a letter or email.

If you do pursue one of these options, you will need to address the
following requirements under the Freedom of Information Act 1991 (SA) (FOI
Act):

 

13—Applications for access to agencies' documents

An application for access to an agency's document—

 a. must be in writing; and
 b. must specify that it is made under this Act; and
 c. must be accompanied by such application fee as may be prescribed; and
 d. must contain such information as is reasonably necessary to enable the
document to be identified; and
 e. must specify an address in Australia to which notices under this Act
should be sent; and
 f. must be lodged at an office of the agency, and may request that access
to the document be given in a particular way.

 

Please do not hesitate to reach out if you require assistance with lodging
a FOI on (08) 8226 6145 or [3][email address]

Please note, there will be no further action on this email.

 

Kind regards

 

Freedom of Information

Corporate Communications

Department for Health and Wellbeing

Government of South Australia

 

Tel: 8226 6145

Fax: 8226 6955

Email: [4][email address]

 

[5]DHW_Logo mono

 

This email may contain confidential information, which also may be legally
privileged. Only the intended recipient(s) may access, use, distribute or
copy this email. If this email is received in error, please inform the
sender by return email and delete the original. If there are doubts about
the validity of this message, please contact the sender by telephone. It
is the recipient’s responsibility to check the email and any attached
files for viruses.

 

 

 

From: Health:CE <[email address]>
Sent: Friday, October 11, 2024 11:17 AM
To: Health:FOI (OCE) <[email address]>
Subject: FW: Freedom of Information request - ME/CFS Electroencephalogram
(EEG) to objectively measure reduction in brain function with exertion

 

OFFICIAL

 

OFFICIAL

Good morning,

 

Please see below update from the auhtor.

 

Please make appropriate contact with the author as relevant.

 

Kind regards,

 

Department for Health and Wellbeing

SA Health | Government of South Australia

 

This e-mail may contain confidential information, which also may be
legally privileged. Only the intended recipient(s) may access, use,
distribute or copy this e-mail. If this e-mail is received in error,
please inform the sender by return e‑mail and delete the original. If
there are doubts about the validity of this message, please contact the
sender by telephone. It is the recipient’s responsibility to check the
e-mail and any attached files for viruses.

OFFICIAL

 

show quoted sections