Determination of Permanent Disability - ME/CFS
Dear National Disability Insurance Agency,
The NDIA's TAB has a reference document that can be found at:
https://www.righttoknow.org.au/request/t.
This TAB document is silent on how permanency of a person severely impaired by ME/CFS is to be established.
I request information held by the NDIA relating to how the staff making access decisions, or reviewing participant's plans, determine whether or not a person is permanently impaired by ME/CFS.
*I request the information held from now back to 2022.
Yours faithfully,
Julie Keys
Note I do not require the names of the NDIA staff just their job titles.
Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team.
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800 110.
Please visit our [1]Access to Information webpage to find out more about
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Should you have a query unrelated to FOI, please contact the Agency by
email at [9][email address] or via webchat at [10]ndis.gov.au.
Alternatively, you can also contact us by phoning 1800 800 110.
Kind regards
Freedom of Information Team
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [11][NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
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References
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3. https://www.ndis.gov.au/about-us/policie...
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4. https://www.ndis.gov.au/participants/usi...
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5. https://www.ndis.gov.au/providers/workin...
https://www.ndis.gov.au/providers/workin...
6. https://data.ndis.gov.au/
https://data.ndis.gov.au/
7. mailto:[NDIA request email]
mailto:[NDIA request email]
8. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
9. mailto:[email address]
mailto:[email address]
10. https://www.ndis.gov.au/
https://www.ndis.gov.au/
11. mailto:[NDIA request email]
Cindy Nutley
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [1][email address]
[2]NDIA logo
[3]LGBTIQA+ rainbow graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
[4]Aboriginal and Torres Strait Islander flags graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
-----Original Message-----
From: Julie Keys <[FOI #12199 email]>
Sent: Monday, 21 October 2024 9:25 PM
To: foi <[NDIA request email]>
Subject: Freedom of Information request - Determination of Permanent
Disability - ME/CFS
[You don't often get email from
[5][FOI #12199 email]. Learn why this is
important at [6]https://aka.ms/LearnAboutSenderIdentific... ]
Dear National Disability Insurance Agency,
The NDIA's TAB has a reference document that can be found at:
[7]https://aus01.safelinks.protection.outlo....
This TAB document is silent on how permanency of a person severely
impaired by ME/CFS is to be established.
I request information held by the NDIA relating to how the staff making
access decisions, or reviewing participant's plans, determine whether or
not a person is permanently impaired by ME/CFS.
*I request the information held from now back to 2022.
Yours faithfully,
Julie Keys
Note I do not require the names of the NDIA staff just their job titles.
-------------------------------------------------------------------
Please use this email address for all replies to this request:
[8][FOI #12199 email]
Is [9][NDIA request email] the wrong address for Freedom of Information
requests to National Disability Insurance Agency? If so, please contact us
using this form:
[10]https://aus01.safelinks.protection.outlo...
This request has been made by an individual using Right to Know. This
message and any reply that you make will be published on the internet.
More information on how Right to Know works can be found at:
[11]https://aus01.safelinks.protection.outlo...
Please note that in some cases publication of requests and responses will
be delayed.
If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.
-------------------------------------------------------------------
**********************************************************************
IMPORTANT: This e-mail is for the use of the intended recipient only and
may contain information that is confidential, commercially valuable and/or
subject to legal or parliamentary privilege. If you are not the intended
recipient you are notified that any review, re-transmission, disclosure,
dissemination or other use of, or taking of any action in reliance upon,
this information is prohibited and may result in severe penalties. If you
have received this e-mail in error please notify the sender immediately
and delete all electronic and hard copies of this transmission together
with any attachments. Please consider the environment before printing this
e-mail
**********************************************************************
References
Visible links
1. mailto:[email address]
5. mailto:[FOI #12199 email]
6. https://aka.ms/LearnAboutSenderIdentific...
7. https://www.righttoknow.org.au/request/t
8. mailto:[FOI #12199 email]
9. mailto:[NDIA request email]
10. https://www.righttoknow.org.au/change_re...
11. https://www.righttoknow.org.au/help/offi...
foi would like to recall the message, “Disclosure log request”.
********************************************************************** IMPORTANT: This e-mail is for the use of the intended recipient only and may contain information that is confidential, commercially valuable and/or subject to legal or parliamentary privilege. If you are not the intended recipient you are notified that any review, re-transmission, disclosure, dissemination or other use of, or taking of any action in reliance upon, this information is prohibited and may result in severe penalties. If you have received this e-mail in error please notify the sender immediately and delete all electronic and hard copies of this transmission together with any attachments. Please consider the environment before printing this e-mail **********************************************************************
Good morning Julie,
A few minutes ago I sent you an email in error, that email did not include
the correct outgoing message and included my personal signature.
Please delete that mail, and my colleague Poojan will resend the email
with all the information you have requested.
Apologies for this error and any confusion.
Thanks and regards
Cindy
-----Original Message-----
From: Julie Keys <[1][FOI #12199 email]>
Sent: Monday, 21 October 2024 9:25 PM
To: foi <[2][NDIA request email]>
Subject: Freedom of Information request - Determination of Permanent
Disability - ME/CFS
[You don't often get email from
[3][FOI #12199 email]. Learn why this is
important at [4]https://aka.ms/LearnAboutSenderIdentific... ]
Dear National Disability Insurance Agency,
The NDIA's TAB has a reference document that can be found at:
[5]https://aus01.safelinks.protection.outlo....
This TAB document is silent on how permanency of a person severely
impaired by ME/CFS is to be established.
I request information held by the NDIA relating to how the staff making
access decisions, or reviewing participant's plans, determine whether or
not a person is permanently impaired by ME/CFS.
*I request the information held from now back to 2022.
Yours faithfully,
Julie Keys
Note I do not require the names of the NDIA staff just their job titles.
-------------------------------------------------------------------
Please use this email address for all replies to this request:
[6][FOI #12199 email]
Is [7][NDIA request email] the wrong address for Freedom of Information
requests to National Disability Insurance Agency? If so, please contact us
using this form:
[8]https://aus01.safelinks.protection.outlo...
This request has been made by an individual using Right to Know. This
message and any reply that you make will be published on the internet.
More information on how Right to Know works can be found at:
[9]https://aus01.safelinks.protection.outlo...
Please note that in some cases publication of requests and responses will
be delayed.
If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.
-------------------------------------------------------------------
**********************************************************************
IMPORTANT: This e-mail is for the use of the intended recipient only and
may contain information that is confidential, commercially valuable and/or
subject to legal or parliamentary privilege. If you are not the intended
recipient you are notified that any review, re-transmission, disclosure,
dissemination or other use of, or taking of any action in reliance upon,
this information is prohibited and may result in severe penalties. If you
have received this e-mail in error please notify the sender immediately
and delete all electronic and hard copies of this transmission together
with any attachments. Please consider the environment before printing this
e-mail
**********************************************************************
References
Visible links
1. mailto:[FOI #12199 email]
2. mailto:[NDIA request email]
3. mailto:[FOI #12199 email]
4. https://aka.ms/LearnAboutSenderIdentific...
5. https://www.righttoknow.org.au/request/t
6. mailto:[FOI #12199 email]
7. mailto:[NDIA request email]
8. https://www.righttoknow.org.au/change_re...
9. https://www.righttoknow.org.au/help/offi...
Dear Julie Keys
Thank you for your below request seeking access to documents from the
Agency’s Disclosure Log.
Please find attached the following documents:
· 23/24-1127, 23/24-1128, 23/24-1134 – Document – Disclosure Log.
· 22/23-1186 – Document – Disclosure Log.
Kind regards,
Poojan
Freedom of Information Team
Governance, Risk & Legal - Complaints Management and FOI.
General Counsel Division
National Disability Insurance Agency
E [1][NDIA request email]
[2]NDIA logo
[3]LGBTIQA+ rainbow graphic
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
-----Original Message-----
From: Julie Keys <[4][FOI #12199 email]>
Sent: Monday, 21 October 2024 9:25 PM
To: foi <[5][NDIA request email]>
Subject: Freedom of Information request - Determination of Permanent
Disability - ME/CFS
[You don't often get email from
[6][FOI #12199 email]. Learn why this is
important at [7]https://aka.ms/LearnAboutSenderIdentific... ]
Dear National Disability Insurance Agency,
The NDIA's TAB has a reference document that can be found at:
[8]https://aus01.safelinks.protection.outlo....
This TAB document is silent on how permanency of a person severely
impaired by ME/CFS is to be established.
I request information held by the NDIA relating to how the staff making
access decisions, or reviewing participant's plans, determine whether or
not a person is permanently impaired by ME/CFS.
*I request the information held from now back to 2022.
Yours faithfully,
Julie Keys
Note I do not require the names of the NDIA staff just their job titles.
-------------------------------------------------------------------
Please use this email address for all replies to this request:
[9][FOI #12199 email]
Is [10][NDIA request email] the wrong address for Freedom of Information
requests to National Disability Insurance Agency? If so, please contact us
using this form:
[11]https://aus01.safelinks.protection.outlo...
This request has been made by an individual using Right to Know. This
message and any reply that you make will be published on the internet.
More information on how Right to Know works can be found at:
[12]https://aus01.safelinks.protection.outlo...
Please note that in some cases publication of requests and responses will
be delayed.
If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.
-------------------------------------------------------------------
**********************************************************************
IMPORTANT: This e-mail is for the use of the intended recipient only and
may contain information that is confidential, commercially valuable and/or
subject to legal or parliamentary privilege. If you are not the intended
recipient you are notified that any review, re-transmission, disclosure,
dissemination or other use of, or taking of any action in reliance upon,
this information is prohibited and may result in severe penalties. If you
have received this e-mail in error please notify the sender immediately
and delete all electronic and hard copies of this transmission together
with any attachments. Please consider the environment before printing this
e-mail
**********************************************************************
References
Visible links
1. mailto:[NDIA request email]
3. https://intranet.ndiastaff.ndia.gov.au/h...
4. mailto:[FOI #12199 email]
5. mailto:[NDIA request email]
6. mailto:[FOI #12199 email]
7. https://aka.ms/LearnAboutSenderIdentific...
8. https://www.righttoknow.org.au/request/t
9. mailto:[FOI #12199 email]
10. mailto:[NDIA request email]
11. https://www.righttoknow.org.au/change_re...
12. https://www.righttoknow.org.au/help/offi...
Dear foi,
Thank you for providing me with the 2019 TAT advice and the 2020 submission made to the NDIA by ME/CFS Australia in 2020.
In 2021 the UK NICE Guideline was updated and that the USA Centre for Disease Clinic, the Mayo Clinic, the Bateman Horne Clinic, the Workwell Foundation et al have all updated their guidelines and advice for managing ME/CFS - these guidelines warn of the dangers of graded exercise therapy (GET) due to the harm (often severe) that it typically causes a person with ME/CFS.
The TAT advice provided predates the submission by ME/CFS Australia's and the major changes in recommendations for managing ME/CFS as per the above mentioned guidelines.
Can you provide me with:
A copy of correspondence originating from the NDIA as a result of the 2020 ME/CFS Australia submission.
A copy of how the NDIA planers are to determine the permanency or otherwise of the impairments caused by the neurological condition ME/CFS (myalgic encephalomyelitis).
Yours sincerely,
Julie Keys