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Treatments Myalgic Encephalomyelitis - also known as ME/CFS

Julie Keys made this Freedom of Information request to National Disability Insurance Agency

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Dear National Disability Insurance Agency,

I require a copy of all documents held or used by the NDIA to determine whether or not a person's myalgic encephalomyelitis (ME) is permanent.

The information requested includes but not be limited to: the drugs, treatments, management regimes that the persons medical professional is expected to provide before making the determination that the condition is permanent.

Yours faithfully,

Julie Keys

Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team.
Please note: due to a high volume of requests, our ability to respond to
you in a timely manner may be affected. We will action your request as
soon as possible and will endeavour to process your matter within the
legislative deadlines. We may need to seek your agreement to an extension
of time. We appreciate your understanding if this is required.
Participant Information
Did you know the NDIA has other ways to access the documents and
information that we hold?

Participants, Guardians and Nominees can obtain copies of some participant
information through our National Contact Centre (NCC). For more
information about what’s available through the NCC, please contact 1800
800 110.
Please visit our [1]Access to Information webpage to find out more about
accessing information through:

* The [2]Participant Information Access (PIA) scheme
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* The [4]myplace portal for participants
* The [5]myplace portal for providers

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You can also request data and statistics. Please visit our [6]Data and
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If you are able to obtain your information from a source listed above, you
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Further Information
Information about how to make an FOI request can be found on our website:
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Should you have a query unrelated to FOI, please contact the Agency by
email at [9][email address] or via webchat at [10]ndis.gov.au.
Alternatively, you can also contact us by phoning 1800 800 110.
Kind regards

Freedom of Information Team

Complaints Management & FOI Branch

General Counsel Division

National Disability Insurance Agency

E [11][NDIA request email]

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Dear Julie Keys

Freedom of Information Request: Acknowledgement

Thank you for your request of 23 April 2024, made under the Freedom of
Information Act 1982 (FOI Act), for copies of documents held by the
National Disability Insurance Agency (NDIA).

We apologise for our delay in communications.

Processing timeframes

A 30-day statutory period for processing your request commenced from 24
April 2024 in accordance with section 15(5)(b) of the FOI Act. Therefore,
the due date for a decision on access was 23 May 2024. However, I note
this time has lapsed and as a result your request is taken to be a deemed
refusal under section 15AC of the FOI Act.

We sincerely apologise for this delay. We confirm we are continuing to
process your request for information and will ensure to provide you the
documents as soon as practical.

We have consulted with relevant NDIA staff who could be expected to be
able to identify documents within the scope of the request, including
staff who are knowledgeable about how to conduct searches of the NDIA’s
systems. At this stage, we are awaiting documents returned after
consultations with NDIA staff from relevant line areas.

Unless you advise otherwise, we will take it that you agree to the names
and contact details of NDIA staff being excluded from the scope of your
request (that is, the information will be treated as irrelevant).

Charges

We may apply a processing charge to your request and will advise you as
soon as practicable if a charge is payable.

Disclosure Log

Information released under the FOI Act may be published on the NDIA’s
disclosure log located on our website, subject to certain exceptions.

If you have any concerns about the publication of information you have
requested, please contact us.

Further help

Please contact us at [1][NDIA request email] if you have any questions or need
help.

We will contact you using the email address you provided. Please advise if
you would prefer us to use an alternative means of contact.

Thank you for your patience.

Kind regards

Ramya

Senior Freedom of Information Officer

Complaints Management & FOI Branch

General Counsel Division

National Disability Insurance Agency

E [2][NDIA request email]

[3]NDIA logo

[4]LGBTIQA+ rainbow graphic

[5]Aboriginal and Torres Strait Islander flags graphic

-----Original Message-----
From: Julie Keys [6][FOI #11350 email]
Sent: Tuesday, April 23, 2024 10:06 AM
To: foi [7][NDIA request email]
Subject: Freedom of Information request - Treatments Myalgic
Encephalomyelitis - also known as ME/CFS

[You don't often get email from
[8][FOI #11350 email]. Learn why this is
important at [9]https://aka.ms/LearnAboutSenderIdentific... ]

Dear National Disability Insurance Agency,

I require a copy of all documents held or used by the NDIA to determine
whether or not a person's myalgic encephalomyelitis (ME) is permanent.

The information requested includes but not be limited to: the drugs,
treatments, management regimes that the persons medical professional is
expected to provide before making the determination that the condition is
permanent.

Yours faithfully,

Julie Keys

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If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

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References

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We don't know whether the most recent response to this request contains information or not – if you are Julie Keys please sign in and let everyone know.

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Treatments Myalgic Encephalomyelitis - also known as ME/CFS

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