Research on specific disabilities from the Technical Advisory Branch

Response to this request is long overdue. By law, under all circumstances, National Disability Insurance Agency should have responded by now (details). You can complain by requesting an internal review.

Dear National Disability Insurance Agency,

I'm writing to request access to documents under the Freedom of Information Act 1982. Specifically, I'm seeking access to these documents from the list of the TAB's research documents (as mentioned on the NDIS disclosure log ~ FOI reference number 23/24-1189):

– Early intervention for agoraphobia, anxiety or schizoaffective disorder
– Eating Disorder Program (Exercise Physiology, Bulimia and Anorexia Nervosa)
– Treatment of Somatic Symptom Disorder
– Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections
– Childhood speech apraxia
– Cystic Fibrosis in Children
– Arthogryposis Multiplex Congenita
– Duchenne Muscular Dystrophy
– Russell Silver Syndrome
– Antley-Bixler Syndrome & Persistent Depressive Disorder
– Down Syndrome and Sleep Apnoea
– Delayed sleep phase disorder
– Persistant Postural Perception Disorder
– New daily persistent headache
– Therapy to manage dementia
– Epilepsy and seizure monitoring - take 2
– Corticobasal syndrome
– Lupus Treatments
– Lyme Disease
– Multiple chemical sensitivity
– Congestive Heart Failure
– Evidence Based Treatments for Osteoporosis
– Evidence Based Treatments for Degenerative Lumbar Disc Disease
– Evidence Based Treatments for Deep Vein Thrombosis / Pulmonary Embolism
– Evidence Based Treatments for Bursitis
– Obesity
– Weight Management Interventions
– Correlation between weight loss and pain, and contraindications of bariatric surgery
– Definition early intervention

As this is a fairly significant request, I think it's reasonable I preemptively agree to extend the decision period to be a total of 60-days now in anticipation of you requiring it to process these documents.

Please contact me at this email address if you require further information or clarification.

Thank you for your assistance.

Yours faithfully,

CS

foi, National Disability Insurance Agency

Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team.
Please note: due to a high volume of requests, our ability to respond to
you in a timely manner may be affected. We will action your request as
soon as possible and will endeavour to process your matter within the
legislative deadlines. We may need to seek your agreement to an extension
of time. We appreciate your understanding if this is required.
Participant Information
Did you know the NDIA has other ways to access the documents and
information that we hold?

Participants, Guardians and Nominees can obtain copies of some participant
information through our National Contact Centre (NCC). For more
information about what’s available through the NCC, please contact 1800
800 110.
Please visit our [1]Access to Information webpage to find out more about
accessing information through:

* The [2]Participant Information Access (PIA) scheme
* The [3]Information Publication Scheme (IPS)
* The [4]myplace portal for participants   
* The [5]myplace portal for providers

Access to Data
You can also request data and statistics. Please visit our [6]Data and
insights webpage page for further information.
If you are able to obtain your information from a source listed above, you
can withdraw your FOI request by emailing [7][NDIA request email]

Further Information
Information about how to make an FOI request can be found on our website:
[8]Freedom of Information
Should you have a query unrelated to FOI, please contact the Agency by
email at [9][email address] or via webchat at [10]ndis.gov.au.
Alternatively, you can also contact us by phoning 1800 800 110.
Kind regards   

Freedom of Information Team 

Complaints Management & FOI Branch

General Counsel Division 

National Disability Insurance Agency 

E [11][NDIA request email]  

  

The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging. 

show quoted sections

References

Visible links
1. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
2. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
3. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
4. https://www.ndis.gov.au/participants/usi...
https://www.ndis.gov.au/participants/usi...
5. https://www.ndis.gov.au/providers/workin...
https://www.ndis.gov.au/providers/workin...
6. https://data.ndis.gov.au/
https://data.ndis.gov.au/
7. mailto:[NDIA request email]
mailto:[NDIA request email]
8. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
9. mailto:[email address]
mailto:[email address]
10. https://www.ndis.gov.au/
https://www.ndis.gov.au/
11. mailto:[NDIA request email]

foi, National Disability Insurance Agency

3 Attachments

Dear CS (clementine saber)

 

Freedom of Information Request: Acknowledgement

 

Thank you for your request of 30 September 2024 made under the Freedom of
Information Act 1982 (FOI Act), for copies of documents held by the
National Disability Insurance Agency (NDIA).

 

 

Scope of your Request

 

You have requested access to:

 

“ … Specifically, I'm seeking access to these documents from the list of
the TAB's research documents (as mentioned on the NDIS disclosure log ~
FOI reference number 23/24-1189):

 

– Early intervention for agoraphobia, anxiety or schizoaffective disorder

 

– Eating Disorder Program (Exercise Physiology, Bulimia and Anorexia
Nervosa)

 

– Treatment of Somatic Symptom Disorder

 

– Paediatric Autoimmune Neuropsychiatric Disorders Associated with
Streptococcal infections

 

– Childhood speech apraxia

 

– Cystic Fibrosis in Children

 

– Arthogryposis Multiplex Congenita

 

– Duchenne Muscular Dystrophy

 

– Russell Silver Syndrome

 

– Antley-Bixler Syndrome & Persistent Depressive Disorder

 

– Down Syndrome and Sleep Apnoea

 

– Delayed sleep phase disorder

 

– Persistant Postural Perception Disorder

 

– New daily persistent headache

 

– Therapy to manage dementia

 

– Epilepsy and seizure monitoring - take 2

 

– Corticobasal syndrome

 

– Lupus Treatments

 

– Lyme Disease

 

– Multiple chemical sensitivity

 

– Congestive Heart Failure

 

– Evidence Based Treatments for Osteoporosis

 

– Evidence Based Treatments for Degenerative Lumbar Disc Disease

 

– Evidence Based Treatments for Deep Vein Thrombosis / Pulmonary Embolism

 

– Evidence Based Treatments for Bursitis

 

– Obesity

 

– Weight Management Interventions

 

– Correlation between weight loss and pain, and contraindications of
bariatric surgery

 

– Definition early intervention..”

 

 

Irrelevant Information

 

Section 22 of the FOI Act allows an Agency to redact information from
documents if that information would reasonably be regarded as irrelevant
to a request for access.

 

Given the nature of your request, it does not seem that NDIA staff
members’ surnames and contact details would be relevant to you. Can you
please send me a reply email confirming that such details are irrelevant
to your request for access?

 

 

Processing Timeframes

 

In accordance with section 15(5)(b) of the FOI Act, a 30-day statutory
period for processing your request commenced from 30 September 2024, this
30-day period expires on 31 October 2024.

 

Thank you for your patience, we appreciate your pre-emptive agreement to a
30-day extension of time.

 

In accordance with section 15AA of the FOI Act, the new due date for us to
decide on your request will be 30 November 2024.

 

 

Disclosure Log

 

Subject to certain exceptions, documents released under the FOI Act will
be published on the NDIA’s disclosure log located on our website.

 

If you have any concerns about the publication of the documents you have
requested, please contact me.

 

 

Next steps

 

Your request will be allocated to an authorised FOI decision-maker. The
decision-maker may need to contact you to discuss a range of matters,
including refining the scope of your request.

 

We will contact you using the email address you have provided. Please
advise if you would prefer us to use an alternative means of contact.

 

In the meantime, if you have any questions or need help, please contact us
at [1][NDIA request email].

 

Regards

 

Megan

Freedom of Information Officer

Complaints Management & FOI Branch

General Counsel Division

National Disability Insurance Agency

E [2][NDIA request email]

 

[3]NDIA logo

[4]LGBTIQA+ rainbow graphic

The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.

[5]Aboriginal and Torres Strait Islander flags graphic

 

 

show quoted sections

Dear National Disability Insurance Agency,

I confirm that NDIA staff surnames and contact details are irrelevant and can be removed.

Yours faithfully,

Clementine Saber

Dear Megan,

This request was due back about two weeks ago now. Can I expect them soon?

Yours sincerely,

Clementine

Dear foi,

This request was due 20 days ago now. Can I expect to receive them before the end of December?

Yours sincerely,

Clementine

Dear foi,

I’m disappointed that both my emails since this became overdue have been left unanswered. You’ve had this request for over three months and there is no dispute about what documents I’m asking for or where they can be found. Please send me a progress update and a new estimated decision date as soon as possible please.

Yours sincerely,

Clementine Saber

foi, National Disability Insurance Agency

Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team. 
 
Please note: due to a high volume of requests, our ability to respond to
you in a timely manner may be affected. We will action your request as
soon as possible and will endeavour to process your matter within the
legislative deadlines. We may need to seek your agreement to an extension
of time. We appreciate your understanding if this is required. 
 
Participant Information 
Did you know the NDIA has other ways to access the documents and
information that we hold? 
 
 
Participants, Guardians and Nominees can obtain copies of some participant
information through our National Contact Centre (NCC). For more
information about what’s available through the NCC, please contact 1800
800 110. 
 
 
Please visit our [1]Access to Information webpage to find out more about
accessing information through: 

* The [2]Participant Information Access (PIA) scheme 
 
* The [3]Information Publication Scheme (IPS) 
 
* The [4]myplace portal for participants    
 
* The [5]myplace portal for providers 

Access to Data 
 
You can also request data and statistics. Please visit our [6]Data and
insights webpage page for further information. 
 
 
If you are able to obtain your information from a source listed above, you
can withdraw your FOI request by emailing [7][NDIA request email] 
 
Further Information 
 
Information about how to make an FOI request can be found on our website:
[8]Freedom of Information 
 
 
Should you have a query unrelated to FOI, please contact the Agency by
email at [9][email address] or via webchat at [10]ndis.gov.au.
Alternatively, you can also contact us by phoning 1800 800 110. 
 
 
Kind regards    
 
 
Freedom of Information Team  
Complaints Management & FOI Branch 
General Counsel Division  
National Disability Insurance Agency  
E [11][NDIA request email]   
   
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.  

show quoted sections

References

Visible links
1. https://www.ndis.gov.au/about-us/policie...
2. https://www.ndis.gov.au/about-us/policie...
3. https://www.ndis.gov.au/about-us/policie...
4. https://www.ndis.gov.au/participants/usi...
5. https://www.ndis.gov.au/providers/workin...
6. https://data.ndis.gov.au/
7. mailto:[NDIA request email]
8. https://www.ndis.gov.au/about-us/policie...
9. mailto:[email address]
10. https://www.ndis.gov.au/
11. mailto:[NDIA request email]

foi, National Disability Insurance Agency

3 Attachments

Dear Clementine Saber,

 

Thanks for your email.

 

I’m sorry about the continued delays with your FOI request.

 

I am writing to give you a progress update on your request.

 

Progress update

 

I have conducted search consultations with a business area in the NDIA to
locate the documents you are seeking. We are now in the final stages of
processing your request.

 

If you have any questions, please reach out. If there are any further
delays, I will keep you updated.

 

Kind regards

 

Megan

Freedom of Information Officer 

Complaints Management & FOI Branch  

General Counsel Division 

National Disability Insurance Agency 

E [1][email address]    

[2]NDIA logo 

[3]LGBTIQA+ rainbow graphic 

[4]A white sign with green text Description automatically generated

 

 

 

 

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Dear Megan,

Thank you for the update, I hope I can hear from you again soon.

Yours sincerely,

Clementine

foi, National Disability Insurance Agency

12 Attachments

Dear Clementine,

 

Further to my previous email, we have located the following nine (9)
documents that are relevant to your request, these documents were
previously released under FOI and published on our disclosure log. I have
attached the following disclosure log documents to this email, can you
please confirm whether you are happy to exclude these documents from the
scope of your request?

 

o Early intervention for agoraphobia, anxiety or schizoaffective
disorder

 

o Childhood speech apraxia

 

o Delayed sleep phase disorder

 

o Evidence Based Treatments for Osteoporosis

 

o Evidence Based Treatments for Degenerative Lumbar Disc Disease

 

o Evidence Based Treatments for Deep Vein Thrombosis / Pulmonary
Embolism

 

o Evidence Based Treatments for Bursitis

 

o Weight Management Interventions

 

o Definition early intervention

 

Additionally, we have located two (2) documents that will be uploaded to
our disclosure log shortly, can you please confirm if you are happy to
exclude these documents from the scope of your request and we will release
the following two documents administratively once they have been
published.

 

o Epilepsy and seizure monitoring - take 2
o Multiple chemical sensitivity

 

We will continue to finalise the remaining documents within your request,
If you have any questions in the meantime, please do not hesitate to reach
out.

 

Kind Regards

 

Megan

Freedom of Information Officer 

Complaints Management & FOI Branch  

General Counsel Division 

National Disability Insurance Agency 

E [1][NDIA request email]    

[2]NDIA logo 

[3]LGBTIQA+ rainbow graphic 

[4]A white sign with green text Description automatically generated

 

 

show quoted sections

Dear Megan,

If the disclosure log documents are exactly the same as what I've requested, then yes I'm happy for them to be excluded from my request. I'm also happy for the other two documents to be excluded soon as I receive a copy of them.

Thanks,

Clementine