ME/CFS: how to manage this neurological disability

Response to this request is long overdue. By law, under all circumstances, National Disability Insurance Agency should have responded by now (details). You can complain by requesting an internal review.

Dear National Disability Insurance Agency,

I am seeking copies of correspondence/phone call logs, emails relating to how to manage ME/CFS between July 2023 to September 2024.

I do not require a copy of the TAB reference document for ME/CFS that may be found at
https://www.righttoknow.org.au/request/t...

Yours faithfully,

Julie Keys

foi, National Disability Insurance Agency

Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team.
Please note: due to a high volume of requests, our ability to respond to
you in a timely manner may be affected. We will action your request as
soon as possible and will endeavour to process your matter within the
legislative deadlines. We may need to seek your agreement to an extension
of time. We appreciate your understanding if this is required.
Participant Information
Did you know the NDIA has other ways to access the documents and
information that we hold?

Participants, Guardians and Nominees can obtain copies of some participant
information through our National Contact Centre (NCC). For more
information about what’s available through the NCC, please contact 1800
800 110.
Please visit our [1]Access to Information webpage to find out more about
accessing information through:

* The [2]Participant Information Access (PIA) scheme
* The [3]Information Publication Scheme (IPS)
* The [4]myplace portal for participants   
* The [5]myplace portal for providers

Access to Data
You can also request data and statistics. Please visit our [6]Data and
insights webpage page for further information.
If you are able to obtain your information from a source listed above, you
can withdraw your FOI request by emailing [7][NDIA request email]

Further Information
Information about how to make an FOI request can be found on our website:
[8]Freedom of Information
Should you have a query unrelated to FOI, please contact the Agency by
email at [9][email address] or via webchat at [10]ndis.gov.au.
Alternatively, you can also contact us by phoning 1800 800 110.
Kind regards   

Freedom of Information Team 

Complaints Management & FOI Branch

General Counsel Division 

National Disability Insurance Agency 

E [11][NDIA request email]  

  

The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging. 

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Dear National Disability Insurance Agency,

I am still waiting for a response to this request.

Please advise when you intend to respond.

Yours faithfully,

Julie Keys

foi, National Disability Insurance Agency

3 Attachments

Dear Julie Keys,

Thank you for your email. Your request has been registered under FOI
24/25-0303.

We sincerely apologise for the delay in providing you with the information
you have requested. Due to a large increase in FOI requests over recent
months, we are currently experiencing delays in processing matters. As a
result, we have not been able to process your matter within 30 days.

Once your matter is allocated to a staff member a decision maker or admin
officer will contact you to advise the matter has progressed and next
steps if appropriate.

If you would like to discuss your request, please contact us at
[1][NDIA request email] and advise of a suitable time to call.  

We offer our sincerest apologies for the inconvenience caused.

Kind regards

Ayobami

Freedom of Information Team 

Complaints Management and FOI Branch

General Counsel Division

National Disability Insurance Agency 

E [2][NDIA request email]  

 

 

The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging. 

 

 

-----Original Message-----

From: Julie Keys <[3][FOI #12019 email]>

Sent: Friday, October 11, 2024 10:04 AM

To: foi <[4][NDIA request email]>

Subject: Re: Freedom of Information request - ME/CFS: how to manage this
neurological disability

 

[You don't often get email from
[5][FOI #12019 email]. Learn why this is
important at [6]https://aka.ms/LearnAboutSenderIdentific... ]

 

Dear National Disability Insurance Agency,

 

 

 

I am still waiting for a response to this request.

 

 

 

Please advise when you intend to respond.

 

 

 

Yours faithfully,

 

 

 

Julie Keys

 

 

 

-----Original Message-----

 

 

 

Thank you for your email to the National Disability Insurance Agency

 

(NDIA) Freedom of Information (FOI) team.

 

Please note: due to a high volume of requests, our ability to respond to

 

you in a timely manner may be affected. We will action your request as

 

soon as possible and will endeavour to process your matter within the

 

legislative deadlines. We may need to seek your agreement to an extension

 

of time. We appreciate your understanding if this is required.

 

Participant Information

 

Did you know the NDIA has other ways to access the documents and

 

information that we hold?

 

 

 

Participants, Guardians and Nominees can obtain copies of some participant

 

information through our National Contact Centre (NCC). For more

 

information about what’s available through the NCC, please contact 1800

 

800 110.

 

Please visit our [1]Access to Information webpage to find out more about

 

accessing information through:

 

 

 

* The [2]Participant Information Access (PIA) scheme

 

* The [3]Information Publication Scheme (IPS)

 

* The [4]myplace portal for participants

 

* The [5]myplace portal for providers

 

 

 

Access to Data

 

You can also request data and statistics. Please visit our [6]Data and

 

insights webpage page for further information.

 

If you are able to obtain your information from a source listed above, you

 

can withdraw your FOI request by emailing [7][NDIA request email]

 

 

 

Further Information

 

Information about how to make an FOI request can be found on our website:

 

[8]Freedom of Information

 

Should you have a query unrelated to FOI, please contact the Agency by

 

email at [9][email address] or via webchat at [10]ndis.gov.au.

 

Alternatively, you can also contact us by phoning 1800 800 110.

 

Kind regards

 

 

 

Freedom of Information Team

 

 

 

Complaints Management & FOI Branch

 

 

 

General Counsel Division

 

 

 

National Disability Insurance Agency

 

 

 

E [11][NDIA request email]

 

 

 

 

 

 

 

The NDIA acknowledges the Traditional Custodians of Country throughout

 

Australia and their continuing connection to land, sea and community. We

 

pay our respects to them and their cultures and to Elders past, present

 

and emerging.

 

 

 

References

 

 

 

Visible links

 

1.
[7]https://aus01.safelinks.protection.outlo...

 

       
[8]https://aus01.safelinks.protection.outlo...

 

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5.
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6.
[17]https://aus01.safelinks.protection.outlo...

 

       
[18]https://aus01.safelinks.protection.outlo...

 

7. [19]mailto:[NDIA request email]

 

        [20]mailto:[NDIA request email]

 

8.
[21]https://aus01.safelinks.protection.outlo...

 

       
[22]https://aus01.safelinks.protection.outlo...

 

9. [23]mailto:[email address]

 

        [24]mailto:[email address]

 

10.
[25]https://aus01.safelinks.protection.outlo...

 

       
[26]https://aus01.safelinks.protection.outlo...

 

11. [27]mailto:[NDIA request email]

 

 

 

-------------------------------------------------------------------

 

Please use this email address for all replies to this request:

 

[28][FOI #12019 email]

 

 

 

This request has been made by an individual using Right to Know. This
message and any reply that you make will be published on the internet.
More information on how Right to Know works can be found at:

 

[29]https://aus01.safelinks.protection.outlo...

 

 

 

Please note that in some cases publication of requests and responses will
be delayed.

 

 

 

If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

 

 

 

-------------------------------------------------------------------

 

**********************************************************************
IMPORTANT: This e-mail is for the use of the intended recipient only and
may contain information that is confidential, commercially valuable and/or
subject to legal or parliamentary privilege. If you are not the intended
recipient you are notified that any review, re-transmission, disclosure,
dissemination or other use of, or taking of any action in reliance upon,
this information is prohibited and may result in severe penalties. If you
have received this e-mail in error please notify the sender immediately
and delete all electronic and hard copies of this transmission together
with any attachments. Please consider the environment before printing this
e-mail
**********************************************************************

References

Visible links
1. mailto:[NDIA request email]
2. mailto:[NDIA request email]
3. mailto:[FOI #12019 email]
4. mailto:[NDIA request email]
5. mailto:[FOI #12019 email]
6. https://aka.ms/LearnAboutSenderIdentific...
7. https://www.ndis.gov.au/about-us/policie...
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27. mailto:[ndia
28. mailto:[FOI #12019 email]
29. https://www.righttoknow.org.au/help/offi...

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foi, National Disability Insurance Agency

6 Attachments

Dear Julie Keys,

 

Freedom of Information Request: Acknowledgement

 

Thank you for your request of 6 September 2024, made under the Freedom of
Information Act 1982 (FOI Act), for copies of documents held by the
National Disability Insurance Agency (NDIA).

 

Scope of your Request

 

You have requested access to:

 

“ … ..I am seeking copies of correspondence/phone call logs, emails
relating to how to manage ME/CFS between July 2023 to September 2024...

 

I do not require a copy of the TAB reference document for ME/CFS…”

 

Irrelevant Information

 

Section 22 of the FOI Act allows an Agency to redact information from
documents if that information would reasonably be regarded as irrelevant
to a request for access.

 

Given the nature of your request, it does not seem that NDIA staff
members’ surnames and contact details would be relevant to you. Can you
please send me a reply email confirming that such details are irrelevant
to your request for access?

 

Processing Timeframes

 

In accordance with section 15(5)(b) of the FOI Act, a 30-day statutory
period for processing your request commenced from 7 September 2024.
Unfortunately, the 30-day period expired on 7 October 2024.

We will still process your request as soon as possible.

 

Clarification

 

In order for your request to meet the requirements of the FOI Act, it must
provide enough information about the documents you are seeking to enable
us to locate them.

 

Based on the description you have provided, we are unable to locate the
documents you are seeking. If you are seeking access to documents from
your NDIS file, you may wish to revise the scope of your request to be for
the following:

 

“transcripts and correspondence from my NDIS file relating to ME/CFS
between July 2023 to 6 September 2024.”

 

If you are happy for us to proceed with your request as outlined above,
please let me know by 14 November 2024.  Please also provide your NDIS
number to assist with searches. 

 

 

Disclosure Log

 

Subject to certain exceptions, documents released under the FOI Act will
be published on the NDIA’s disclosure log located on our website.

 

If you have any concerns about the publication of the documents you have
requested, please contact me.

 

Next steps

 

Your request will be allocated to an authorised FOI decision-maker. The
decision-maker may need to contact you to discuss a range of matters,
including refining the scope of your request.

 

We will contact you using the email address you have provided. Please
advise if you would prefer us to use an alternative means of contact. 
Please be aware that the Right to Know website will not publish
information that is personal in nature.  Please provide an alternative
email that we can contact you on to provide any documents.

 

In the meantime, if you have any questions or need help, please contact us
at [1][NDIA request email].

 

Regards

 

Mykal

Freedom of Information Officer

Complaints Management & FOI Branch

General Counsel Division

National Disability Insurance Agency

E [2][NDIA request email]

 

[3]NDIA logo

[4]LGBTIQA+ rainbow graphic

The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.

[5]Aboriginal and Torres Strait Islander flags graphic

 

 

 

From: foi <[NDIA request email]>
Sent: Monday, 21 October 2024 8:45 AM
To: [FOI #12019 email]
Cc: foi <[NDIA request email]>
Subject: FOI 24/25-0303- Your Request for Information- Update
[SEC=OFFICIAL]

 

Dear Julie Keys,

Thank you for your email. Your request has been registered under FOI
24/25-0303.

We sincerely apologise for the delay in providing you with the information
you have requested. Due to a large increase in FOI requests over recent
months, we are currently experiencing delays in processing matters. As a
result, we have not been able to process your matter within 30 days.

Once your matter is allocated to a staff member a decision maker or admin
officer will contact you to advise the matter has progressed and next
steps if appropriate.

If you would like to discuss your request, please contact us at
[6][NDIA request email] and advise of a suitable time to call.

We offer our sincerest apologies for the inconvenience caused.

Kind regards

Ayobami

Freedom of Information Team

Complaints Management and FOI Branch

General Counsel Division

National Disability Insurance Agency

E [7][NDIA request email]

The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.

 

-----Original Message-----

From: Julie Keys <[8][FOI #12019 email]>

Sent: Friday, October 11, 2024 10:04 AM

To: foi <[9][NDIA request email]>

Subject: Re: Freedom of Information request - ME/CFS: how to manage this
neurological disability

 

[You don't often get email from
[10][FOI #12019 email]. Learn why this is
important at [11]https://aka.ms/LearnAboutSenderIdentific... ]

 

Dear National Disability Insurance Agency,

 

 

 

I am still waiting for a response to this request.

 

 

 

Please advise when you intend to respond.

 

 

 

Yours faithfully,

 

 

 

Julie Keys

 

 

 

-----Original Message-----

 

 

 

Thank you for your email to the National Disability Insurance Agency

 

(NDIA) Freedom of Information (FOI) team.

 

Please note: due to a high volume of requests, our ability to respond to

 

you in a timely manner may be affected. We will action your request as

 

soon as possible and will endeavour to process your matter within the

 

legislative deadlines. We may need to seek your agreement to an extension

 

of time. We appreciate your understanding if this is required.

 

Participant Information

 

Did you know the NDIA has other ways to access the documents and

 

information that we hold?

 

 

 

Participants, Guardians and Nominees can obtain copies of some participant

 

information through our National Contact Centre (NCC). For more

 

information about what’s available through the NCC, please contact 1800

 

800 110.

 

Please visit our [1]Access to Information webpage to find out more about

 

accessing information through:

 

 

 

* The [2]Participant Information Access (PIA) scheme

 

* The [3]Information Publication Scheme (IPS)

 

* The [4]myplace portal for participants

 

* The [5]myplace portal for providers

 

 

 

Access to Data

 

You can also request data and statistics. Please visit our [6]Data and

 

insights webpage page for further information.

 

If you are able to obtain your information from a source listed above, you

 

can withdraw your FOI request by emailing [7][NDIA request email]

 

 

 

Further Information

 

Information about how to make an FOI request can be found on our website:

 

[8]Freedom of Information

 

Should you have a query unrelated to FOI, please contact the Agency by

 

email at [9][email address] or via webchat at [10]ndis.gov.au.

 

Alternatively, you can also contact us by phoning 1800 800 110.

 

Kind regards

 

 

 

Freedom of Information Team

 

 

 

Complaints Management & FOI Branch

 

 

 

General Counsel Division

 

 

 

National Disability Insurance Agency

 

 

 

E [11][NDIA request email]

 

 

 

 

 

 

 

The NDIA acknowledges the Traditional Custodians of Country throughout

 

Australia and their continuing connection to land, sea and community. We

 

pay our respects to them and their cultures and to Elders past, present

 

and emerging.

 

 

 

References

 

 

 

Visible links

 

1.
[12]https://aus01.safelinks.protection.outlo...

 

[13]https://aus01.safelinks.protection.outlo...

 

2.
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7. [24]mailto:[NDIA request email]

 

[25]mailto:[NDIA request email]

 

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[27]https://aus01.safelinks.protection.outlo...

 

9. [28]mailto:[email address]

 

[29]mailto:[email address]

 

10.
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[31]https://aus01.safelinks.protection.outlo...

 

11. [32]mailto:[NDIA request email]

 

 

 

-------------------------------------------------------------------

 

Please use this email address for all replies to this request:

 

[33][FOI #12019 email]

 

 

 

This request has been made by an individual using Right to Know. This
message and any reply that you make will be published on the internet.
More information on how Right to Know works can be found at:

 

[34]https://aus01.safelinks.protection.outlo...

 

 

 

Please note that in some cases publication of requests and responses will
be delayed.

 

 

 

If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

 

 

 

-------------------------------------------------------------------

 

**********************************************************************
IMPORTANT: This e-mail is for the use of the intended recipient only and
may contain information that is confidential, commercially valuable and/or
subject to legal or parliamentary privilege. If you are not the intended
recipient you are notified that any review, re-transmission, disclosure,
dissemination or other use of, or taking of any action in reliance upon,
this information is prohibited and may result in severe penalties. If you
have received this e-mail in error please notify the sender immediately
and delete all electronic and hard copies of this transmission together
with any attachments. Please consider the environment before printing this
e-mail
**********************************************************************

References

Visible links
1. mailto:[NDIA request email]
2. mailto:[NDIA request email]
6. mailto:[NDIA request email]
7. mailto:[NDIA request email]
8. mailto:[FOI #12019 email]
9. mailto:[NDIA request email]
10. mailto:[FOI #12019 email]
11. https://aka.ms/LearnAboutSenderIdentific...
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24. mailto:[ndia
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26. https://www.ndis.gov.au/about-us/policie...
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28. mailto:[email
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30. https://www.ndis.gov.au/
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32. mailto:[ndia
33. mailto:[FOI #12019 email]
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