Documents Related to Unlisted Genetic Disorders
Dear National Disability Insurance Agency,
Please provide all documents, in full, pertaining to Unlisted Genetic Disorders
1. All documents, policies, and internal guidelines that outline the assessment criteria and decision-making process used by the National Disability Insurance Agency (NDIA) for determining eligibility for individuals with genetic disorders not listed on List A, List B, List C, or List D.
2. Assessment tools and methodologies applied to evaluate these unlisted genetic disorders for NDIS access and associated funding decisions.
3. Any “disability snapshot” or related summary documents used in these assessments for unlisted genetic disorders.
Yours faithfully,
Tessa Kelton
Thank you for your email to the National Disability Insurance Agency
(NDIA) Freedom of Information (FOI) team.
Please note: due to a high volume of requests, our ability to respond to
you in a timely manner may be affected. We will action your request as
soon as possible and will endeavour to process your matter within the
legislative deadlines. We may need to seek your agreement to an extension
of time. We appreciate your understanding if this is required.
Participant Information
Did you know the NDIA has other ways to access the documents and
information that we hold?
Participants, Guardians and Nominees can obtain copies of some participant
information through our National Contact Centre (NCC). For more
information about what’s available through the NCC, please contact 1800
800 110.
Please visit our [1]Access to Information webpage to find out more about
accessing information through:
* The [2]Participant Information Access (PIA) scheme
* The [3]Information Publication Scheme (IPS)
* The [4]myplace portal for participants
* The [5]myplace portal for providers
Access to Data
You can also request data and statistics. Please visit our [6]Data and
insights webpage page for further information.
If you are able to obtain your information from a source listed above, you
can withdraw your FOI request by emailing [7][NDIA request email]
Further Information
Information about how to make an FOI request can be found on our website:
[8]Freedom of Information
Should you have a query unrelated to FOI, please contact the Agency by
email at [9][email address] or via webchat at [10]ndis.gov.au.
Alternatively, you can also contact us by phoning 1800 800 110.
Kind regards
Freedom of Information Team
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [11][NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout
Australia and their continuing connection to land, sea and community. We
pay our respects to them and their cultures and to Elders past, present
and emerging.
References
Visible links
1. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
2. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
3. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
4. https://www.ndis.gov.au/participants/usi...
https://www.ndis.gov.au/participants/usi...
5. https://www.ndis.gov.au/providers/workin...
https://www.ndis.gov.au/providers/workin...
6. https://data.ndis.gov.au/
https://data.ndis.gov.au/
7. mailto:[NDIA request email]
mailto:[NDIA request email]
8. https://www.ndis.gov.au/about-us/policie...
https://www.ndis.gov.au/about-us/policie...
9. mailto:[email address]
mailto:[email address]
10. https://www.ndis.gov.au/
https://www.ndis.gov.au/
11. mailto:[NDIA request email]
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
Dear Tessa Kelton
Thank you for your emails of 25 November 2025 with multiple Freedom of Information requests.
I'm sorry for the delay in getting back in touch on these matters. Unfortunately I've overlooked these in my list.
I just wanted to let you know that I am now processing all six of your matters and will aim to get decision letters to you as soon as possible.
Very sorry for the delay.
Kind regards
Cindy
Cindy - CGN062
Senior Freedom of Information Officer
Complaints Management & FOI Branch
General Counsel Division
National Disability Insurance Agency
E [NDIA request email]
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.
The NDIA acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.