This is an HTML version of an attachment to the Freedom of Information request 'ME/CFS - background to the drug list contained in the 2024 TAB document'.



Our reference: FOI 24/25-0733 
 
 
 
GPO Box 700 
Canberra   ACT   2601 
1800 800 110 
ndis.gov.au 
25 March 2025 
 
Julie Keys 
By email: xxxxxxxxxxxxxxxxxxxxxxxxxx@xxxxxxxxxxx.xxx.xx 
 
 
Dear Julie Keys 
Freedom of Information request — Request consultation process 
Thank you for your correspondence of 7 November 2024, in which you requested access 
under the Freedom of Information Act 1982 (FOI Act) to documents held by the National 
Disability Insurance Agency (NDIA). 
Scope of your request 
You have requested access to the fol owing documents: 
“I am seeking information on the drugs that Australians with ME/CFS are expected to 
consider prior to gaining access to the NDIS. 

The 2024 TAB document found at the link below lists a number of drugs that to the best 
of my knowledge are NOT generally available in Australia for treating or managing 

ME/CFS. 
Given that the NDIA has advised that it has not information other than its TAB document 
I am now seeking information/correspondence/notes on how the drug list was 

determined..." 
On 19 December 2024, you have revised the scope of your request to be for the following 
documents:  
“I confirm that I am seeking the following information: 
Internal communication referencing the Table 1 Symptom Management strategies 
contained within the 2024 TAB document ‘Myalgic encephalomyelitis / 

Chronic fatigue syndrome’. 
This document lists a number of drugs and I am seeking information on the source of 
each of these recommendations for the various drugs that are listed…” 

 
 
 
1  
 

Internal Consultation 
Based on the revised scope, I initiated a search for documents within the NDIA’s Technical 
Advice and Practice Improvement Branch (TAPIB). TAPIB has advised that to determine if 
there has been any communication across the branch referencing Table 1 – Symptom 
Management Strategies in the paper titled "Myalgic Encephalomyelitis / Chronic Fatigue 
Syndrome" (dated 18/03/2024), the business area would need to contact all 138 advisors 
and assistant directors and request each staff to review their Outlook folders, personal files, 
and Microsoft Teams chats to see if they have mentioned the specific table. The 
documentation of the instructions, execution of the process, and subsequent oversight and 
compilation for this FOI request is anticipated to take more than 150 hours to complete. 
Any documents that are provided would then need to be assessed as being within scope of 
the request and then will need to be reviewed for any sensitivities and possible exemption 
under the FOI Act and scheduled.  We would then need to consider any consultations and 
carry these out if required, a decision wil  need to be made on each document, and a 
decision letter prepared. This wil  significantly increase the hours that it wil  take an FOI 
officer to process your request.   
Practical refusal reason  
As a result of my enquiries, I am satisfied that the work involved in processing the request in 
its current form would substantially and unreasonably divert the resources of the Agency 
from its other operations.1 
I therefore intend to refuse your request on the basis of a ‘practical refusal reason’ under 
section 24AA of the FOI Act. A practical refusal reason exists if either (or both) of the 
following applies:  
a)  the work involved in the processing of the request would substantially and 
unreasonably divert the resources of the Agency from its other operations; and/or  
b)  the request does not satisfy the requirement in section 15(2)(b) of the FOI Act, which 
requires an FOI applicant to provide such information concerning the document/s 
they are seeking access to, to enable the Agency to be able to identify it or them  
In reaching this view, I have taken account the following:  
•  the internal advice from TAPIB, who are the subject matter experts within the NDIA.  
However, before I make a final decision, I am writing to provide you with an opportunity to 
revise your request.2 This is called a ‘request consultation process’ as set out under section 
24AB of the FOI Act.  
I am authorised to make this decision under section 23(1) of the FOI Act.  
 
1 Section 24AA of the FOI Act 
2 Section 24AB of the FOI Act.   

 


Request consultation process  
In circumstances where an Agency is considering a practical refusal, it is required to 
undertake a request consultation process under section 24AB of the FOI Act. The purpose of 
this letter is to initiate that process. You now have 14 days to do one of the following: 
•  withdraw your request;  
•  make a revised request; or  
•  indicate that you do not wish to revise the request (in which case the current scope of 
your request wil  stand).  
If you do not do one of the three things listed above during the consultation period, your 
request wil  be processed on the basis of the current scope, and it is likely to be refused on 
the basis that processing it would represent a substantial and unreasonable diversion of the 
Agency’s resources.  
During this period, you are welcome to seek assistance to revise your request. If you revise 
your request in a way that adequately addresses the practical refusal reason outlined above, 
we wil  recommence processing it.  
Please note that the time taken to consult with you regarding the scope of your request is not 
taken into account for the purposes of calculating the timeframe for processing your request.  
If you wish to discuss this process, please contact me by email at xxx@xxxx.xxx.xx.   
If you do not contact me within this period, that is by 9 April 2025, I am required to provide 
you with a decision on access on the basis that a ‘practical refusal reason’ exists under 
section 24AA of the FOI Act.  
Please do not hesitate to contact me if you have any questions.  
Yours sincerely 
 
 
 
Wendy (WNN633) 
Senior Freedom of Information Officer 
Information Release, Privacy and Legal Operations Branch 
Reviews and Information Release Division