This is an HTML version of an attachment to the Freedom of Information request 'ME/CFS - Treatments (second request)'.



Our reference: FOI 24/25-0309 
GPO Box 700 
Canberra   ACT   2601 
1800 800 110 
17 October 2024 
 
ndis.gov.au 
 
 
Julie Keys 
 
By email: xxxxxxxxxxxxxxxxxxxxxxxxxx@xxxxxxxxxxx.xxx.xx 
 
Dear Julie Keys 
 
Freedom of Information request - Notification of Decision 
 
Thank you for your correspondence of 5 September 2024, requesting access, under the 
Freedom of Information Act 1982 (FOI Act), to documents held by the National Disability 
Insurance Agency (NDIA). 
 
The purpose of this letter is to provide you with a decision on your request. 
 
Scope of your request  
You requested access to the following documents: 
 
“….I request a copy of all documents held or used by the NDIA to determine whether or 
not a person with the neurological condition Myalgic Encephalomyelitis (ME) is 
permanently disabled.” 

 
Extension of time 
On 6 October 2024, you agreed to a 7-day extension of time under section 15AA of the FOI 
Act, making 15 October 2024 the new date to provide you with a decision on access. The  
Office of the Australia Information Commissioner (OAIC) was advised of this agreement on 8 
October 2024. 
 
Expiration of Time 
On 14 October 2024, I emailed you and requested a further 3-day extension under section 
15AA of the FOI Act. You did not respond and as a result we are deemed to have refused 
your request under section 15AC of the FOI Act.  
 
Despite this, I have continued to process your application. I apologise for the delay and 
confirm that you retain your right to seek external review of this decision.  
 
Search efforts   
Staff from the NDIA’s Service Guidance (SG), Technical Advice and Practice Improvement 
(TAPIB) and Scheme Eligibility branches conducted searches for documents and no 
documents relating to your scope were identified. 
  
Decision on access to documents 
I have decided to refuse access to the information you have requested on the basis that the 
documents are non-existent or cannot be located pursuant to section 24A of the FOI Act. 
The reasons for my decision are set out in Attachment A of this decision letter.  
 
I made this decision as an authorised FOI decision maker under section 23(1) of the FOI 
Act. 
 
 



 
Rights of review 
Your rights to seek a review of my decision, or lodge a complaint, are set out at 
Attachment B

 
If you have any enquiries about this matter, please contact me by email at xxx@xxxx.xxx.xx. 
 
Yours sincerely 
 
Jennifer (JFD472)  
Senior Freedom of Information 
Complaints Management and FOI Branch 
General Counsel Division 
 
 
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Attachment A 
 
Statement of Reasons 
FOI Application 24/25-0309 
_________________________________________________________________________ 
 
I have refused access to the information you requested under section 24A of the FOI Act on 
the basis that documents containing such information cannot be located or do not exist. 
 
Relevant law 
Under  the  FOI  Act,  a  person  has  a  right  to  be  given  access  to  documents  of  an  agency. 
However, the right of access is subject to limitations, including grounds for refusal of access. 
Section  24A  of  the  FOI  Act  states  that  an  agency  may  refuse  a  request  for  access  to  a 
document  if  all  reasonable  steps  have  been  taken  to  find  the  document  and  the  agency  is 
satisfied that the document cannot be found or does not exist.   
 
Searches for documents 
After reviewing the scope of your FOI application, I identified the need to make enquiries with 
the NDIA’s Service Guidance (SG), Technical Advice and Practice Improvement (TAPIB) and 
Scheme Eligibility branches for documents relevant to the scope of your request. 
 
I was provided with the same TAPIB research documents that have been previously released 
to you under FOI decision notice dated 24 July 2024 relating to FOI matters 23/24-1127, 1128 
and  1134,  but  no  additional  new  information  was  provided.    I  have  not  considered  these 
documents again as I am of the view they do not relate to your scope.   
 
This is because you have requested access to the documents held or used by the NDIA to 
determine whether or not a person with the condition Myalgic Encephalomyelitis (ME) is 
permanently disabled.   
 
I again direct you to the following links that list conditions that meet the NDIS Access 
disability requirements, noting that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 
(ME/CFS) is not included. 
 
List A: Conditions that are likely to meet the disability requirements | NDIS 
List B: Conditions that are likely to result in a permanent impairment | NDIS 
 
As per the advice previously provided to you, permanency of disability and functional 
impairment are established through submission of current medical and allied health reports 
which details evidence of treatment undertaken for a condition and its subsequent outcomes 
on the condition itself.  A detailed explanation about this is available by following the link 
provided below which is located on the NDIS website: 
 
Applying to the NDIS   
 
I refer you to the paragraph titled “Is there any medical treatment for your impairment?” 
which clearly states the steps involved when assessing permanency of disability.   
 
Based on the search results from the relevant business areas, I am satisfied that the 
documents you request access to do not exist.  
 
I therefore refuse access to the information under section a 24A of the FOI Act on the basis 
that the information cannot be found or does not exist.
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Attachment B 
Your review rights  
 
Review by the Office of the Australian Information Commissioner 
The FOI Act gives you the right to apply to the Office of the Australian Information 
Commissioner (OAIC) for a review of this decision. 
 
If you wish to have the decision reviewed by the OAIC, you may apply for review within 60 
days of receiving this letter.  
 
You can apply to the OAIC for review in the following ways: 
 
Online: www.oaic.gov.au  
Post:   GPO Box 5218, Sydney NSW 2001 
Email:  xxxxxxxxx@xxxx.xxx.xx 
Phone: 1300 363 992 (local call charge) 
 
Complaints to the Office of the Australian Information Commissioner or the 
Commonwealth Ombudsman 
You may complain to either the Commonwealth Ombudsman or the OAIC about actions the 
NDIA took in relation to your request. The Ombudsman will consult with the OAIC before 
investigating a complaint about the handling of an FOI request. 
 
You can make a complaint to the OAIC using the contact details identified above, or to the 
Ombudsman by: 
 
Phone: 1300 362 072 (local call charge) 
Email:  xxxxxxxxx@xxxxxxxxx.xxx.xx  
 
Your complaint should set out the grounds on which you consider the OAIC or the 
Ombudsman should investigate the NDIA’s handling of your FOI request.