This is an HTML version of an attachment to the Freedom of Information request 'ME/CFS - How do you require functional capacity to be demonstrated'.



Our reference: FOI 24/25-0310 
 
GPO Box 700 
Canberra   ACT   2601 
1800 800 110 
12 November 2024 
 
ndis.gov.au 
 
 
Julie Keys 
 
By email: xxxxxxxxxxxxxxxxxxxxxxxxxx@xxxxxxxxxxx.xxx.xx 
 
Dear Julie Keys 
 
Freedom of Information request - Notification of Decision 
 
Thank you for your correspondence of 5 September 2024, seeking access under the 
Freedom of Information Act 1982 (FOI Act) to documents held by the National Disability 
Insurance Agency (NDIA). 
 
The purpose of this letter is to notify you of my decision on your application.  
 
Scope of your request  
You requested access to the following documents: 
 
“…I request a copy of all documents relating to how the NDIA requires the functional 
capacity of people with the neurological disability ME/CFS to be demonstrated in order to 
demonstrate substantially reduced functional capacity...”  

 
The purpose of this letter is to notify you of my decision on your application.  
 
Request for Extension of time 
On 26 September 2024, we wrote to you requesting your agreement to a 30-day extension 
of time under section 15AA of the FOI Act. As you did not agree to the extension, the due 
date is unchanged.  
 
Expiration of time 
A 30-day statutory period for processing your request commenced from 6 September 2024, 
in accordance with section 15(5)(b) of the FOI Act. The due date for a decision on access 
was 2 October 2024I note this time has lapsed and as a result we are deemed to have 
refused your request under section 15AC of the FOI Act.  
 
Despite this, I have continued to process your application. I apologise for the delay and 
confirm that you retain your right to seek external review of this decision.  
 
Search efforts   
Staff from the NDIA’s Service Guidance (SG), Technical Advice and Practice Improvement 
(TAPIB) and Service Delivery (SD) branches conducted searches, and no documents 
relating to the scope of your request were identified. I have set out the reasons for this 
outcome in Attachment A to this letter. 
 
Decision on access to documents 
I have decided to refuse access to the information you have requested on the basis that the 
documents do not exist or cannot be located pursuant to section 24A of the FOI Act. 
 



I made this decision as an authorised FOI decision maker under section 23(1) of the FOI 
Act. 
 
I have provided a detailed statement of the reasons for my decision in Attachment A to this 
decision notice. 
 
Rights of review 
Your rights to seek a review of my decision, or lodge a complaint, are set out at 
Attachment B

 
If you have any enquiries about this matter, please contact me by email at xxx@xxxx.xxx.xx. 
 
Yours sincerely 
 
Patrick (PHO293) 
Senior Freedom of Information Officer 
Complaints Management and FOI Branch 
General Counsel Division 



 
 
 
Attachment A 
Statement of Reasons 
FOI Application 24/25-0310 
___________________________________________________________________ 
 
Refused information 
I have refused access to the information you requested under section 24A of the FOI Act on 
the basis that documents containing such information cannot be located or do not exist. 
 
Relevant law 
Under  the  FOI  Act,  a  person  has  a  right  to  be  given  access  to  documents  of  an  agency. 
However, the right of access is subject to limitations, including grounds for refusal of access. 
Section  24A  of  the  FOI  Act  states  that  an  agency  may  refuse  a  request  for  access  to  a 
document  if  all  reasonable  steps  have  been  taken  to  find  the  document  and  the  agency  is 
satisfied that the document cannot be found or does not exist.   
 
Searches for documents 
After reviewing the scope of your FOI application, I identified the need to make enquiries 
with the NDIA’s Service Guidance (SG), Technical Advice and Practice Improvement 
(TAPIB) and Service Delivery (SD) Branches for documents relevant to the scope of your 
request.  
 
I was provided with the same TAPIB research documents that have been previously 
released to you under FOI decision notice dated 24 July 2024 relating to FOI matters 23/24-
1127, 1128 and 1134 but no additional or new documents were provided by the TAPIB 
branch.  
 
I have not considered these documents relevant to the scope of your request. While their 
subject matter relates to ME/CFS they do not outline ‘how the NDIA requires the functional 
capacity…to be demonstrated in order to demonstrate substantially reduced functional 
capacity’.
  
 
Two documents were provided by Service Guidance that are publicly available. I do not 
consider them relevant to the scope of your request as they are not specific to ME/CFS, 
however as they are publicly available, I have provided them to you in the form of links 
below.  
 
No documents were located by Service Delivery. 
 
NDIS (Becoming a Participant) Rules 2016 
The legislative instrument National Disability Insurance Scheme (Becoming a Participant) 
Rules 2016 
provides details under rule 5.8 about - ‘When does an impairment result in 
substantially reduced functional capacity to undertake relevant activities’. 
This rule specifies:  
 
An impairment results in substantially reduced functional capacity of a person to 
undertake one or more of the relevant activities—communication, social interaction, 
learning, mobility, self-care, self-management (see paragraph 5.1(c))—if its result is 
that: 

(a)  the person is unable to participate effectively or completely in the activity, 
or to perform tasks or actions required to undertake or participate 
effectively or completely in the activity, without assistive technology, 
equipment (other than commonly used items such as glasses) or home 
modifications; or 



(b)  the person usually requires assistance (including physical assistance, 
guidance, supervision or prompting) from other people to participate in the 
activity or to perform tasks or actions required to undertake or participate 
in the activity; or 

(c)  the person is unable to participate in the activity or to perform tasks or 
actions required to undertake or participate in the activity, even with 
assistive technology, equipment, home modifications or assistance from 
another person.  

 
This rule was particularly relevant in a recent Administrative Appeals Tribunal (AAT) decision 
regarding a participant with ME/CFS accessing the NDIS Garcia Albiol and National 
Disability Insurance Agency [2024] AATA 496 (21 March 2024).
 
 
Publicly Available Information 
As discussed above, I have been advised by Service Guidance that the NDIS website 
discusses ‘substantially reduced functional capacity’ in two locations in addition to general 
NDIS application information. I have provided the links here:   
 
Do you meet the disability requirements? | NDIS 
Does your impairment substantially reduce your functional capacity? | NDIS 
Applying to the NDIS | NDIS 
 
Referencing the paragraph titled “Does your impairment substantially reduce your functional 
capacity?”, the guidance discusses and gives examples of various functional impacts within 
the domains of communication, socialising, learning, mobility and self-care. It further goes on 
to state that we get information from participants when they apply to the NDIS, specifically 
regarding capacity and where the participant needs more support. 
 
The guidance continues under the heading ‘What type of evidence should you provide?’ that 
evidence may be from a doctor or specialist to confirm a permanent impairment, or from an 
allied health professional or other medical professional that tells us about the impacts to a 
participant’s functional capacity. 
 
Agency delegates will also, on occasion, administer a functional capacity tool such as the 
World Health Organisation Disability Assessment Tool (WHODAS), however, this is only 
done in certain circumstances and, only if a person is currently accessing the scheme. 
 
In summary, there is no document held by the NDIA that contains specific criteria that a 
participant with ME/CFS needs to meet to demonstrate substantially reduced functional 
capacity. Functional capacity is assessed on a case-by-case basis, is guided by evidence 
provided by a participant, and requires the participant to meet the criteria of NDIS Rule 5.8.  
 
Conclusion  
Based on the information I received from the relevant business areas, I consider there are 
reasonable grounds to be satisfied that documents containing the information you seek do 
not exist. I therefore refuse access to the information under section a 24A of the FOI Act on 
the basis that the information cannot be located or does not exist. 
 



 
 
 
Attachment B 
Your review rights  
 
 
Review by the Office of the Australian Information Commissioner 
The FOI Act also gives you the right to apply to the Office of the Australian Information 
Commissioner (OAIC) to seek a review of this decision. 
 
If you wish to have the decision reviewed by the OAIC, you may apply for review within 60 
days of receiving this letter.  
 
You can apply to the OAIC for review in the following ways: 
 
Online: 
www.oaic.gov.au  
Post:  
GPO Box 5218, Sydney NSW 2001 
Email: 
xxxxxxxxx@xxxx.xxx.xx 
Phone: 
1300 363 992 (local call charge) 
 
Complaints to the Office of the Australian Information Commissioner or the 
Commonwealth Ombudsman 
You may complain to either the Commonwealth Ombudsman or the OAIC about actions the 
NDIA took in relation to your request. The Ombudsman will consult with the OAIC before 
investigating a complaint about the handling of an FOI request. 
 
You can make a complaint to the OAIC using the contact details identified above, or to the 
Ombudsman by: 
 
Phone: 
1300 362 072 (local call charge) 
Email:  
xxxxxxxxx@xxxxxxxxx.xxx.xx  
 
Your complaint should set out the grounds on which you consider the OAIC or the 
Ombudsman should investigate the NDIA’s handling of your FOI request.